When it comes to what is going on with my mother’s slide into death, please do not overestimate what I have done or as the good and dutiful daughter my mind might want you to perceive me as in certain moments. Tonight I am feeling tired, and so because of this, I am stepping away from my mother’s bedside for a couple of days, knowing that sleep is the best meditation.
Having just said that, I also want to relate some intriguing and somewhat bizarre occurrences I’m experiencing recently, but I’ll get to that a little further down in the second part of the story.
What I write here for all the world to see can feel very private. So private in fact, that my own mother, were she aware of it, would probably be horrified by my disclosures. If I were twelve years old, more than likely, I wouldn’t be let out of my room for weeks. How do I know this? It happened when I was ten and twelve and fifteen—oh, the trouble I got in for my writing. It stopped me for a lot of years. Those were different times and that was before the internet.
I have taken all of this into consideration—a lifetime of consideration, because, inherently, I was born to write and this is what we do as collectors and chroniclers of stories. I had to make a decision to do what I what was born to do, and to hell with the consequences. I am totally alive when I write, when I let out all the secrets and mistaken truths of my life, when I am witness to the work and wisdom of both microcosm and macrocosm.
The reason I write this is to chronicle these precious days. I want to journal thoughts, emotions, insights and observations as they come up. If by doing so and making it public, only one person is encouraged or helped, even if it’s just me, then mission accomplished. This is my service in life, which is why we are gifted with talents and/or passionate interests, not to hoard for ourselves, but to give away.
We grieve and celebrate in community, the sorrows halved and the joys doubled by doing so. It is not my conscious wish to write in order to garner admiration or sympathy from you. Honestly, I cannot hold space for that because then I feel falsely obligated to somehow try to either live up to it or live it down. What I write is an intimate logging of experience with death and dying. Too often death and dying can be taboo subjects in a culture that has a difficult time facing its own mortality. We like to present ourselves as happy successful people all the time when inside we may feel quite different, while our emotions are begging for expression. Not an expert on this subject, it’s my desire to open the door to discussions about it.
There is a Buddhist meditation that calls for one to mediate on one’s own death, to envision oneself as already dead. Most assuredly, it is a reality check as we come to appreciate the brevity and impermanence of our life and material possessions and the true value of relationship. This practice has been helpful to me whenever I have practiced it over the years.
I have also discovered a Facebook page, well, several of them from different areas around the country called “Death Café”. I am considering starting one myself when I am a little more rested. In these death cafes around the country, people are gathering in homes and parks and restaurants to have intimate and heart felt discussions regarding death, and no, not in any morbid sense of the word, but an exploration towards wisdom and acceptance of letting go or surrendering that which needs surrendering or whose time has come to an end.
So this is why I write, and not to mention the fact that this is what I do: investigate my thoughts on the page, which is what good writing can be about in the hope of teasing out the curiosity of the reader, even as self, as to their own process of erroneous thoughts and belief system.
I have been spending hours at my mom’s bedside. Saturday, I shed a few tears, no, they were more like sobs right at her bedside. I don’t know if you are supposed to do that in a dying person’s presence, but I did. So did the caregivers. I also talked to her a lot as she slept.
It’s no secret I believe there is Big Love that surrounds us at every moment if we are open to it. Some of you are familiar with the story of my Near Death Experience. Having traveled to the other side where I personally witnessed them, I felt strongly there were angelic forces or beings of light in her room, and so I quietly said a prayer to be able to hear some word of encouragement from them for my own grieving process. A few minutes later, I happened to look through her little bookshelf and discovered the book, Into the Light—Real Life Stories About Angelic Visits, Visions of the Afterlife, and Other Pre-Death Experiences, by John Lerma, M.D.. I couldn’t have received a better word of encouragement and comfort as I began to read, tears running down my face as I did, filling the trash can with snotty tissues as I read.
Mom looked so peaceful hour after hour. However, I had a difficult time leaving her and didn’t get home until 1 am and asleep until 3 am due to a situation. Sunday feeling tired to the bone, I went in to see her in the afternoon.
Walking in her door, there was something different about my time there on Sunday. Because I was so tired, I could not be as present for her as I had the day before. Not that she was able to talk to me or acknowledge my presence at any point, still I felt the duty to be there on Sunday whereas I stayed out of love on Saturday. Sunday, she was agitated and fretful, attempting to lift her head off the pillow, crying and moving her legs around. I tried to comfort her and stroke her hair, but nothing worked despite the meds she was receiving to calm her.
It is said that your loved one can still hear you even if they don’t appear to be all there or are comatose. So I continued to talk to her, and even played a recording from some family members she hadn’t heard from in a while. I was hoping for closure, and I thought she might need to hear their voices expressing their love for her. That only upset her more it seemed. Of course, these were my ideas mostly in my attempts to soothe her.
By 8 pm, watching her, I sat and meditated, asking whatever unseen benevolent forces that were in her room to please show me why she was so agitated. These are the words that immediately formed in my mind:
“Go home! You are exhausted and on a deep level, she is worried for you. You are keeping her from her rest.”
I knew this was correct. If you knew my mom, you would know that no matter what state of mind she is in, the first thoughts for her are the well being and safety of her kids. I immediately got up from the chair, gathered my things, kissed her on the cheek and went home.
Today, Monday, I awoke feeling not much more rested and wondering if I should attempt to go see her again. I sat in my chair and meditated for a long while, asking again if I should stay home or go see her. I mean what if I miss something or she passes and I am not there? What if she says something in a moment of lucid clarity just before crossing over and I miss it? What if she dies alone? I want no regrets.
My cell phone rang. I considered not answering it until realizing it was my youngest sister calling. Right away, she wanted to know how I was feeling. Living a state apart, we keep up with our lives by phone. I told her how tired I felt. She relayed the word “faith” to me. It was something I must hear, she said. It pertained to all of us in letting mom go. There was an urgency to tell me—that we must trust mom will pass as she needs to and if I am meant to be there when she does, I will be. If not, not. It will be perfect however it turns out. The more important thing needed was taking care of myself right now.
How did she know? I had not told her the events of the day before regarding Mom’s agitation and my prayer for guidance. She relayed how she was letting Mom go, too, sending her spirit to the arms of Love Itself. She prayed, and as she did, I actually saw Mom fly up in a beautiful quilt of memories to a whole happy crowd of people waiting to welcome her. I saw the light. There was a party waiting for her! I saw mom suddenly looking young and radiant as she dropped the quilt to look back down at us and say “Thank you!”
A bit later while paying her bills (see how I wasn’t resting?!), the phone rang again. Hospice calling to tell me she was very peaceful today, sleeping soundly. I had left an anxious message during the middle of my visit the day before with news of my mom’s agitation and what we might do about it. The hospice nurse bluntly told me that she believed my mom had most likely been triggered by my presence. I then told her of my tiredness and agreed. “Stay home and rest for a couple of days”, she said. They would let me know if something came up.
What happened next was most strange: Doing some work on my computer, I felt a sudden and unexpected gentle touch, like someone had softly stroked my shoulder. I felt it through the pajamas and fleece robe I was still in. I whipped around to see what or who was there or if something had fallen from the ceiling on me. Nothing. Empty space and nothing on the floor or me. What was that, or better yet, whom?
So what is the takeaway from all of this? You might call me crazy or foolish, but if you have read anything else I’ve written, I believe there answers out there we don’t even have questions for yet. I am learning to surrender, to let go, admit my vulnerability, my lack of answers–and it is perfect. Some habits die hard as the one who in another life always felt the compulsion to rescue everyone from everything. I don’t have to adjust or fix my mother’s road to the other side. Her death does not need my intervention. Life does not require for its existence that I fix or adjust or straighten everything, only leave much as I find it in its perfect imperfection.
Having said all that, I’m climbing back into my perfect rumpled, unmade bed where all my pillows are just right.