1. I have been seeing a great deal of this handsome frog.
2. I’ve been having delirium tremens from using the wrong detergent.
3. I have been spending a great deal of time with my mom who is getting ready to make her final transition into the great beyond.
If you picked 1 or 2, sorry! Door number 3 it is, but, hopefully, you already knew that, although I have dated a few handsome frogs in my time.
My mother is getting ready to walk or sail or fly, or whatever it is we do, through that big door called death. We all have to go through it sooner or later. However, as her daughter, it is extremely challenging to watch. Hospice tells me she is experiencing terminal agitation, which is a stage where the body has run its course but is still fighting to survive. There can be intense anxiousness, twitching, jerking, and an inability to lay still, odd body contortions, combativeness and anger. This can start from hours up to a couple of weeks preceding death. She is already a week into it, but had been declining somewhat dramatically the last several weeks before.
There is a beautiful resident cat in the cottage of the memory care facility where my mother lives. His name is Jasper, and he is a silken black very Zen like cat. I am told that when a resident is getting ready to pass, he will climb on their beds and stay there. He starts at the feet, and as it gets closer, he moves to the middle of the bed and at the end he is on the pillow with them. In the past, my mother never appreciated him jumping on her bed, but last week she was found petting him as he lay next to her. Jasper has taken up residence at her feet.
It is difficult to watch someone you have loved your whole life shrink down to nothing and be in so much agony in their slide towards the inevitable. She has been in hell every minute and completely aware of being there even if the person who once lived in her body is no longer there.
I have had to make some painful decisions in these final days as to her care and comfort, and I have to tell you, it has been wrenchingly difficult and guilt producing. There is so much I don’t know here. She has a DNR order (Do Not Resuscitate) in place, but what to do about getting water or a little bit of food into them if there is still the willingness or ability to swallow at all? She has been placed on heavy meds in order to keep her comfortable. Otherwise, she is attempting to get up and then repeatedly falling; shockingly, she’s even been found climbing on chairs and sitting on tables. No one would expect this from a very frail and skeletal 95 lb. woman who just two years ago, weighed in at 180 lbs. After several recent small strokes, her speech is unintelligible, but she is still amazingly strong and has a death grip when she decides to hold on to something. She has become a danger to herself at this point, and after getting as much water and a bit of food down her as she has been able to tolerate, she now sleeps, due to the influence of medication.
As her guardian, it has been up to me to tend to all the business of dying. I am either with her, or making phone calls and tying up a lot of loose ends every day. It is a tremendous amount of work, not to mention the emotional business. In the evening, I collapse and cry in my compulsion to try and make her dying as comfortable as possible. This is not always so possible, and there are daily emotional adjustments to her constant and many changes.
Still there have been some funny and/or meaningful things she has been able to say in the middle of it all:
- She mentioned that she keeps seeing “Dad” hanging around a lot lately and didn’t know why.
- The other day, my girlfriend, who has adopted my mom as her own and has provided invaluable help as Certified Nursing Assistant, was tending to her. Mom looked up at her and asked, “If you’re my sister, then why are you so short?!” (Her “tall” sister passed away several years ago, and my mom has been mentioning her a lot lately—so she must be hanging around, too.)
- My same girlfriend told her that she was very beautiful, and my mom straightened herself and replied in a clear distinct voice, “Yes, I AM beautiful!” before slumping over and returning to her unintelligible speech once again.
You have to find reasons to laugh. Yesterday after we left my mother sleeping and after we met in conference with administration and hospice regarding mom’s care where I chose comfort over everything else they could do, my girlfriend and I went to lunch and had a glass of wine. Jokingly, I informed her that taking care of the dying requires lots of wine. She said she thought she would write that into her contract the next time she takes care of a terminally ill patient.
Family and friends have made last minute visits to see her, but it does not appear that she recognizes much of anyone anymore. Yesterday while sitting next to her bed, this same girlfriend who has been there every step of the way through this journey with me, suggested to my mother that she hug me. On cue, my mother who was determined to lean vertically in my direction, put her head on my chest. I put my arms around her and for over an hour we stayed that way—her ear against my beating heart, my fingers playing in her hair, gently caressing her back and arm…it was the last moment of heaven together before she closed her eyes—maybe forever.